January 10th, 2020 – There is an overwhelming strength in your presence, so I write.
Complicated grief is unlike any emotion I’ve ever felt. When Holden was in the hospital, his noise machine made the sounds of the ocean rolling quietly in and out, all day and all night; you loved the sound of the ocean – it calmed you.
I hold on so tight to that sound now. I found myself day dreaming of when we would make it out of that hospital room, together, to see and hear the waves rolling in, in person.
We would sit with our heels deep in the sand and I would hold you and stare, as the sounds and smells surround us; the stuff that the best memories are made of.
So today, I woke up and drove all the way to the ocean, so I could sit and listen to the waves rolling in, for the both of us.
Here, I feel safe to let myself fully feel everything as I think of you. Here, I feel you with me.
December 22, 2019 – I have noticed that sharing and being vulnerable has been bringing those who have lost forward in strength. Those who unfortunately, can relate to my family’s current situation.
So here it goes.
I’m having a super hard time this morning. Anyone grieving knows that emotions change by the hour, the minute, & even the second. It feels horrifically surreal that Holden isn’t here sleeping a room over from me in his nursery; the same nursery that I go into over fifty times a day, completely devastated that we aren’t rocking back and forth together, reading the one of many books that he was lovingly gifted. Books I planned on cracking open every night for so many years to come.
I was born to be a mom, but specifically to be his. He looked so much like me; I can’t shake the image of that adorable round little button nose in my head. I don’t want to, no matter how much it breaks me when I do.
Every time I look in the mirror across his room, all I see is him. I miss him more than I could ever explain. It’s actually impossible to describe.
He is, and always will be, the best gift that I have ever been given. Mamas and others who have lost, you are not alone.
Holden Hausfeld was born December 5th, 2019 at 6.9 pounds and 18.5 inches long. Our first born had finally arrived after eons of loving anticipation. He was perfect in every way – his smell, intoxicating. His skin as soft as silk. His cry as timid as the new kid in class and as sweet as cake. He had an old soul and was as calm as they come – the sweetest disposition.
His pregnancy was one full of perfect health checks, passing with flying colors.
Holden was unknowingly born with a congenital heart defect, which we were not made aware of until twenty four hours after birth.
Those were, to date, the best twenty four hours of my life. These hours were followed by the worst four days of my existence.
He was immediately transferred for care, but ended up passing away December 10th. If love could have saved him, he would still be lying on my chest as we speak.
In those five short days, Holden was able to take in milk, exceeding amounts that the health care team had ever witnessed. If he loved one thing, it was breastfeeding and his mama’s milk.
My supply had come in so quickly to meet Holden’s feeding demands, that I had to continue to pump after he had passed. I made the ultimate decision to continue to pump, as emotionally painful as it was, in order to gift other babies who were sick in the ICU, fighting as hard as he had. To give these babies a fighting chance at a heightened immune system and a beautiful life. A life Holden was unable to live. He was such a fighter.
In his name, I wanted to continue to fight for him and for the others who needed help fighting for their lives.
Fighting for the mom who just couldn’t get her little one to latch. For the mom who had chemo, therefore had no supply. For the mom battling postpartum depression, left feeling little to no support to breastfeed. For the baby who’s heart is ferociously beating through a defect, to see another day.
I fought. I continue to fight. To all the mama’s looking to make a difference – join me in this fight and donate to those who need us the most!”
This guy right here… this wonderful, selfless, hard-working, emotionally supportive husband and dad right here. You held me tonight for a long time and you let me cry, as you always do, for as long as it takes.
I continue to pump every night and he knows how hard this is for me to do, emotionally and physically. It’s a serious commitment. One that he cannot fully understand, because he cannot experience it himself.
But I’ll tell you what he does understand. He understands the heartbreak I feel on a nightly basis that our son isn’t here for this. That the feelings I feel, cannot be consoled with words.
So instead, he falls asleep, every night, comforting me with a simple touch. A hand on my leg saying, “I’m here and I’m not going anywhere. You are not alone”. A hand to say, “I miss him too, I love him and I love you”. A hand, even when he doesn’t feel okay himself.
My God, how lucky I am. My God, how lucky Holden was to have you as his father.
I’m Taylor & this is my husband Ryan. We are the parent’s of Holden & the founders of our nonprofit, Holden’s Milky Way.
We have three major goals that we aim to meet. This includes creating a milk-sharing network/platform where local mamas can match with another mama+baby to exchange donor milk & create a special relationship with another who just “gets it”. We believe that by meeting face to face, that milk-donation becomes far more personal; a common goal is met: to watch the baby receiving the milk, grow happy & healthy. Lastly, we hope to build lasting, life-long connections between our ever growing community that can provide physical & emotional support whenever it is needed.
Our mission is to connect others to this genuine support system. To provide lactation resources and medical advice. To provide a raw and emotional guide to infant loss and grief or any current struggle a family may be enduring. To remind you that you are never alone in your lactation struggles, your thoughts, or your emotions – a sea of supportive women and mother’s walk along your side. This non-profit is here to ease your tribulations and to provide a comforting, non judgemental resource.
It takes a village to raise a child – please be a part of our village and help us make a true difference in this world. To support others is to live like Christ.
Continue following us for Holden’s full story & how by simply existing, he has impacted so many others!